July 5, 2012

Remember, Remember, the Fifth of July

Photo taken July 1st, 2007 by C. Lemanski
Today is a very important day in our family.

You see, yesterday was Independence Day.  And, just as it was five years ago, it fell on a Wednesday.

Five years ago, yesterday, we woke up late.  We lounged in bed for hours.  We got up and, in our pajamas, I made us an epic brunch of California Benedict.  We ate a dozen eggs.  We went back to bed, laughing and full.  We napped lightly, and then showered and got dressed.

Five years ago yesterday, M and I enjoyed our mid-week day off by heading to a friend's rooftop and backyard barbecue, drinking some Shandy, and sweating and smiling in the absurd Chicago heat.

We walked through Pilsen, where we lived, as though through a different world.  Every other block was blocked off, many illegally, for parties and concerts and fireworks.  There were music and colorful explosions everywhere.

I remember one moment in particular.  We were drinking beers at the party, and I caught M pointing and me and grinning.  His friend Bradley gave him a high five.  I had no idea what they were talking about.

It turns out, M was telling Bradley that he was going to ask me to marry him.

You see, M had this grand master plan.  On Friday, M was going to take the day off, and we were going to go up to Guppy Lake.  We were going to spend an entire week up there, TWO weekends even.  M was going to bring a bottle of champagne and a ring, and take me to my favorite picnic spot, and propose to me.

But on the Fourth of July, five years ago, he couldn't wait.  We walked home from the party just after dusk, completely surrounded by fireworks.  In the air, on the ground, shooting out of windows... everywhere.  We laughed, we held hands, and we went back to our incredibly cool and comfortable basement apartment.

And M asked me to marry him.  No ring, no pretense, just the colorful showers of light filtering through the curtains.

And I said yes.

We had one wonderful night.  We both went to work the next day.  At lunch, we met up and picked out a ring.  And then I went home after work, while M went to play in his company softball game.

I got in my pajamas, and read through an inbox filled with congratulations from friends and family.  And then the phone rang.

It was my future MIL.  She was in a panic.  A coworker of M's had called her, he was being taken to the hospital in an ambulance.  By the time the coworker called me, I already had my shoes on.  With my pajamas.

It took me less than fifteen minutes to take the usual half hour drive to the hospital- at rush hour, during the infamous congestion of the Taste of Chicago.

I cried most of the way.  I got lost for a harrowing moment on lower Wacker Drive.


Filmed on Lower Wacker Drive.  It is one of Dante's circles of Hell.


Horrifically, this song came on in the car:




I nearly crashed the car I was crying so hard.

The first time that, outloud, I called M my fiance was when I was looking for him in the ER.  A very nice, older doctor told me to calm down.  That he would be fine.

I didn't know then that that would be my mantra.

On the Fifth of July, five years ago, M had a gran mal seizure and strokelike symptoms.  He awoke in the ambulance.  He had several CAT scans.

They showed several masses in his brain.

I spent the latter half of the Fifth of July, five years ago, shivering in the hospital in my pajamas, joking with M about the copious amounts of dirt that just kept coming off of him.  He got three sheet changes while he was moved from gurney to gurney.  They were all completely full of ballpark sand.

When we finally left the hospital, there was already a new plan.  We weren't going to Guppy Lake.  We were going to spend the weekend with both sets of our parents, who up until then had never met, getting ready for M's exploratory surgery the following Tuesday- the Tenth of July.

On Tuesday, we went in early in the morning for M's surgery.  My parents, M's parents, my sister, two sets of M's ants and uncles, and M's grandfather and his wife were there.

M was so brave.  He didn't show a moment of hesitation.  We were going to do this brain surgery thing.

I have never experienced a longer day in my life, sitting in that private waiting room, next to the phone that was bolted to the table which might ring with information about the surgery.  Across from the clock that was bolted to the wall.  Cruel room design.

It took all day.

Finally, M's surgeon came into the room, told us that M's surgery went well and that a few of us could go see him in the recovery room soon.  But first he wanted to talk to "the parents and fiancee."

He took us to a tiny little consultation room.  Tiny.  And in that room he told us what he had found in surgery.

The masses were cancerous.  They were worse than cancerous, they were stage four of an incredibly malignant brain cancer called astrocytoma.

They were inoperable.

He kept using the phrase, "extremely aggressive" to describe the cancer.  Not the treatment, but the cancer itself.

And then, bravely, my future father in law asked about the prognosis.

Sometimes, the doctor said, you see patients surviving five or ten years out.  Sometimes.

Not often.

He told us that we shouldn't expect it.

He told us that, with the advanced stage of the cancer, with its placement... most of the time patients only have about two years.  Maybe less.

But, he added, M was young.  He was healthy, otherwise.  Who knew?

It was like a dream.  I didn't cry.  Well, I cried a little, but mostly because I just didn't know what else to do.  I followed my future in-laws back to our private waiting room, where almost a dozen people were waiting for the news we would have to deliver.

Everyone wept.

M's grandfather, the pastor, prayed.

I did nothing.  I stared at nothing, I thought nothing, I felt nothing.

And as my family, and M's family, began hugging me and weeping, I heard myself telling them that everything was going to be just fine.

I told my future in-laws, M will be just fine.  He's going to beat this.  He's going to be okay.  Everything is going to be fine.


I said it over and over and over again.  I said it and I willed myself to believe it, because believing absolutely anything else was going to destroy my entire world.

Over and over and over.

From our "Save the Date" shoot- M newly hair-free
He's going to be fine.  He's going to be fine.  He's going to be just fine.


And nobody contradicted me.

I saw him in recovery, and he was groggy and in pain and confused.  But he told me to go home.  To sleep.  To come back in the morning.

I wouldn't have, if I had the emotional energy to argue with my parents and in-laws and sister.

I slept on the couch that night.  My future in-laws slept in our guest bed, and my parents slept in our bed, and I pulled out a blanket and curled up on the couch.  As I lay there, too conflicted to rest, my father came up and sat down next to me.  And while he sat there, and hugged me, I wept.

I wept like I have never wept before, or since.

I cried and cried and cried, because I had been happy.  I had been so happy.  I had absolutely all that I wanted from life- I had everything.  And after only sixteen hours... it was gone.  My life was gone.  I wasn't newly engaged and in love and ready to start out... I was preparing for widowhood.

I let myself mourn.

And in the morning, I started telling myself again, he's going to be just fine.


We went to the hospital, where he was slightly less groggy.  And we prepared to introduce him to the news. To tell him that he had terminal brain cancer.

But we didn't.  We couldn't.  Nobody did.  We told him what kind of cancer, what stage, and that it was very aggressive.  But we didn't give him the prognosis.  He said he didn't want to know.

I thought he was so brave.  And I knew I was right- he was going to be just fine.

We spent the next ten days getting him into a clinical trial for an additional treatment.  Banking sperm.  Fighting with his HMO.

And I kept telling everyone, he was going to be just fine.

Three days before our wedding, Ted Kennedy was taken to the hospital by ambulance.  It was big news.  It turned out that he had seizure.

Of course, M kept up on the developments of that news.

...and then the news came that Ted Kennedy had the same kind of cancer that M had.

...and along with that news, the reporters did their job of giving the whole story.  The entire story.  Including the prognosis.

M learned that Ted Kennedy probably had eighteen months to live.

That was three days before our wedding.

Nine months after his diagnosis.

He was halfway there.

And I told him, he was going to be just fine.


M's speech at our wedding,
"Thank you for your thoughts
and prayers.  We heard every one."
Five years ago, today.

Five years ago, and he has had no new growth, no new symptoms.

Five years, and his MRIs are clearer and clearer, less and less frequent.

Five years, and my husband is just fine.  His cholesterol is his biggest health problem.

Five years.

Every Independence Day, we celebrate our engagement.  And we celebrate the one incredibly happy day we shared.  Most years, I make California Benedict for breakfast.  Each fireworks display reminds us of one of the happiest days we will ever have.

I love my husband more than I can possibly say.  The last five years have been more than wonderful, they have been a gift.  While I can't claim to have cherished every day, I can promise you that I have never once gone to bed feeling bad about the course our lives have taken.  No matter how hopeless it seemed during the year of M's unemployment, with two new babies... no matter how exhausting it was with M working insane hours, with both of us in school, with me pregnant and with the girls at home... no matter how frustrating it has been to live our lives together, we have been unfathomably fortunate.

My husband is alive and well.  He is just fine.  Five years later.

His medical team doesn't talk about his prognosis.  They talk about the weather, our children, their children, even politics.

M?  He's just fine.  We're just old friends with the neuro-oncology department now.  Bitter enemies of our old pharmacy technicians.

The Fifth of July is always an odd day for us.  On the one hand, it is full of bad memories.  Memories of fear and confusion and pain.  On the other hand, it is a victory.  It's another Fifth of July that we can spend together.

Five years.  And no sign that there is an end in sight.

Shortly before our wedding, M told me it was his goal to have spent more of his life married to me than not.

Five years down, twenty to go.

I am so glad to spend every minute of them with my husband.  I am so grateful to have him with me, not folding laundry and forgetting to take out the trash.

There is nobody on this earth I would rather spend the next twenty years with.

Or the twenty after that.

Or the twenty after that.

Five years is a long time.  But not nearly long enough.

Here's to the rest of our lives- the long and open-ended ideal we all mean when we say "for the rest of our lives."  Not "eighteen to twenty four months."  Not, "for as long as we have."  Not for, "as long as you're mine."

Forever.  Until we are old and gray, and our children and grandchildren are grown, and death comes to us as the natural end to a life well and thoroughly lived.

Here's to every five years.

Here's to the Fifth of July.

...and to the Twenty Third of May

Here's to every single day.

Our family, nearly five years later.
Here's to M.  The love of my life.

20 comments:

  1. You're making me cry at work. Mazel tov and happy Fifth of July. Here's to many, many, many more.

    ReplyDelete
  2. speechless, but feeling compelled to note how speechless I am. very moving.

    ReplyDelete
  3. Congratulations to M and you L. You are 2, or make that 5 of the most amazing people I have the privilege of knowing. Love you guys <3 and can't wait to meet the new little one!

    ReplyDelete
  4. Seriously in tears over here. What a beautiful post!

    ReplyDelete
  5. I've heard you mention the cancer but I never could get the whole backstory figured out. I'm sitting here sobbing now. How amazing that he is healthy and you are both so incredibly strong. I would live every day scared, bitter and angry. You are living life to the fullest and so is your H you are both such admirable people!

    ReplyDelete
  6. Found you thru PYHO and I am bawling at your post. What mixed emotions the 5th of July brings. I'm so glad he's just fine!

    ReplyDelete
  7. Wow What an incredible story you two have. And I am so glad he is just fine!

    ReplyDelete
  8. I also just linked to your blog post, because for I think it is so inspiring, in many ways. Thank you.

    ReplyDelete
  9. What a beautiful and heart breaking story. Your family is amazing.

    ReplyDelete
  10. Oh, wow... I was so scared, but I love the happy ending. And yes, it is a totally happy ending.

    ReplyDelete
  11. What a beautiful post! I'm so glad that he is okay- it had to be so scary to go through all this!

    ReplyDelete
  12. We start off early watching television and then envisioning our American dream. As a child, we play with our babies, doll houses, and writing in our diaries. We start at the tender age of 4 or 5 looking for our prince charming to marry. Over time, we replace our crushes of princes and other Disney characters with real boys. Sometimes it is the boy that sits next to you in class or a movie star. Either way, it is getting you ready for that all important task called LOVE.........

    http://www.richlymiddleclass.com/parenthood

    Thanks

    ReplyDelete
  13. That is a powerful story. It is a needed reminder to cherish loved ones over anything else. Beautiful.

    ReplyDelete
  14. Has it really been 5 years? I remember that time, your news capping what had already been a truly awful summer in my home. My early 20s self thinking that this would never pass. It did. Hope showed up, in fine form. Your two's life and love is truly an inspiration. Many hugs.

    ReplyDelete
  15. That was an incredible and honest post. Great story and I'm glad I ended up reading it.

    ReplyDelete
  16. Absolutely beautiful story, I am in tears. Thanks for sharing and I am a new follower!
    Hope you are having a great day!
    Michelle
    www.delicateconstruction.com

    ReplyDelete
  17. What an inspirational and touching story! Thank you for sharing your family's victory with us. :)

    ReplyDelete
  18. I had no idea what I was getting into when I stumbled upon your blog through a google image search for funny pregnancy announcements. Your story is joyous, crushingly sad, and victorious all in the same breath. It reminds me to keep hanging on, no matter what ANYONE says. Congrats to making it to another July 5th M & L. And here's to another 20. + 20. + 20. BTW, M is super hot with a shaved head....you go girl!

    ReplyDelete

LinkWithin

Related Posts Plugin for WordPress, Blogger...

Vote for me!

Visit Top Mommy Blogs To Vote For Me!